Verslag Nationale Conferentie Zeldzame Aandoeningen 2013 - page 4

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De tweede congresdag: vrijdag 15 november........................................................................................................................... 27
Welkom en opening ...................................................................................................................................................................... 27
Plenaire presentaties
Expertisecentra: Zeldzame aandoeningen ontweesd – Dhr. Jan Kimpen ..................................................................................... 27
Het NPZZ: Perspectief van een zorgverzekeraar – Dhr. Jeroen Crasborn..................................................................................... 28
Toegang tot weesgeneesmiddelen – Dhr. Bert de Jong ............................................................................................................... 30
Workshop 6 - Realisatie expertisecentra .................................................................................................................................. 31
Inleiding Mw. Wendy van Zelst-Stams.......................................................................................................................................... 31
Inleiding Mw. Hanka Meutgeert ................................................................................................................................................... 32
Samenvatting workshop .......................................................................................................................................................... 33
Workshop 7 - Toegang tot weesgeneesmiddelen en zorg ......................................................................................................... 33
Inleiding Dhr. Wil Toenders .......................................................................................................................................................... 33
Inleiding Mw. Pauline Evers .......................................................................................................................................................... 34
Samenvatting workshop .......................................................................................................................................................... 35
Samenvatting eerste congresdag.............................................................................................................................................. 36
Plenair slotdebat: En nu?! ........................................................................................................................................................ 38
Paneldebat ............................................................................................................................................................................... 39
Bijlagen
Bijlage I.......................................................................................................................................................................................... 41
Programmacommissie
Bijlage II......................................................................................................................................................................................... 41
Reacties op Twitter
Bijlage III........................................................................................................................................................................................ 42
Reacties op de prikborden
De VSOP ........................................................................................................................................................................................ 43
Persbericht VSOP .......................................................................................................................................................................... 45
Programma ................................................................................................................................................................................... 46
Deelnemers................................................................................................................................................................................... 48
Aanbevelingen NPZZ ..................................................................................................................................................................... 51
Organisaties NPZZ ......................................................................................................................................................................... 52
EUCERD Core Indicators................................................................................................................................................................ 53
Sponsors........................................................................................................................................................................................ 54