A RARE Networking Opportunity

26-02-2026 Plus Ultra, Emmy Noetherweg 2, Leiden BioScience Park

• Be part of a community-first event designed around listening and interaction

Program

16:00 – 17:45 | Arrival & reception
Registration, informal welcome, networking

17:45 – 18:00 | Welcome & opening
Opening remarks and context of Rare Disease Day

18:00 – 18:30 | Programme: Perspectives on equity
Short contributions from patients, policy, care, research, and public–private collaboration

18:30 – 18:40 | Light Up for Rare
Symbolic lighting moment and reflection on visibility and impact

18:40 – 19:45 | Networking reception
Informal networking with drinks and food

19:45 – 20:00 | Closing
Thanks and short outlook towards Rare Disease Day