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VSOP - Dutch Patient Alliance for Rare and Genetic Diseases

VSOP is the Dutch national patient umbrella organization for rare and genetic disorders with a membership of approximately 70 disease-specific patient and parent organizations. Its mission is to optimize the outcomes of biomedical and genetic research to the benefit and quality of life of patients, amongst others by stimulating and facilitating patient involvement in clinical research. At VSOP’s office in Soest, The Netherlands, approximately 25 skilled employees, most of them having an (biomedical) academic background, are active in the fields of health care policy, quality of care and patient involvement.