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VSOP - Patient Alliance for Rare and Genetic Diseases

VSOP is the national patient organization for rare and genetic diseases in The Netherlands, with a membership of approximately 90 patient and parent organizations.  VSOP was founded in 1979.
At VSOP’s offices in Soest, 15-20 skilled employees, most of them having an (bio)medical academic background, are active in the fields of health policy, prevention, quality of care, research, genomics, patient involvement, etc.
Since long, VSOP is also active in European and international health policy and (research) projects.
VSOP represents EURORDIS in The Netherlands.

Our aplogies for the currently limited information in English on our website.
However, but don't hesitate to contact us!