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Reflectiedocument weesgeneesmiddelen gepubliceerd (Eurordis)


EURORDIS Reflection Paper
"Breaking the Access Deadlock"


The reflection paper, "Breaking the Access Deadlock to Leave No One Behind", is intended as a work-in-progress contribution of the rare disease patient community, outlining our analysis, thoughts and perspectives on the issue of access to orphan medicines.

This reflection paper does not pretend to propose "the solution" or a definitive new model. With it, we only aim to express in good faith a set of possibilities as further inspiration . We hope that the ideas it contains will be recognised as relevant, or that they may even trigger new thoughts and opportunities.

 download the reflection paper 


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